You may have heard of the rare blood clotting disorder, Antiphospholipid Syndrome, but did you know that it isn’t ‘just’ about the blood? This article is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site from a patient perspective. It consists of findings from research journals, as well as…
The Lowdown on Medications and Antiphospholipid Syndrome (Warfarin, Enoxaparin, DOACs, NSAIDs & More)
This article is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site. In this post, we will focus on medications and Antiphospholipid Syndrome. In particular, warfarin is a key medication for the management of APS, especially if you’ve experienced blood clotting events in the past. We will also take…
14 Summer Essentials to Keep You Cool and Protected
Whether you’re young or old, heat sensitivity can cause extreme discomfort in the summer months. With the right products, you can still enjoy the season doing the activities you enjoy. In this article we’ll show you how to beat the heat with these Amazon summer essentials. This post contains affiliate links. If you make a…
Latest Research on Antiphospholipid Syndrome (2024 Edition)
The bad news about Antiphospholipid Syndrome (APS) is that it’s chronic. The good news is that there are quite a number of exciting new treatments in the works. This article is part of the APS resource library that I’m building up on the site for patients, as a patient who has lived with it for…
Knowing When To Take a Step Back When Living With Chronic Illness
When I tell people I’m sick, they usually think I mean something short-term and contagious like the flu or a stomach bug. If I say I have a chronic illness, they picture conditions like IBS, a bad back, or chronic migraines. The actual reality is all this and more. Yes, and. “I’m sick” I have IBS-like…
Disability and (In)Visibility: Not All Disabilities Are Visible
This week was the start of Disability Pride Month. We’ve loved seeing posts from our Friends in the Fight sharing their own stories of disability, both the challenges and the pride! One theme that comes up a lot in lived experiences of disability is the nuances of visibility. What makes some disabilities visible? Whether from physical markers,…
Myasthenia Gravis Awareness Month
June is Myasthenia Gravis Awareness Month. If you have never heard of MG, you are not alone! We reached out to Friend in the Fight Katie McCurdy to shed some light on this autoimmune condition that affects tens of thousands of Americans. Katie McCurdy is an autoimmune patient, designer, and founder of Pictal Health, a…
4 Tips to Foster Disability Inclusion in the Workplace
Diversity inclusion in the workplace can have benefits for all involved. Not only does it make our society more equitable, but having diverse perspectives – and listening to those voices – is good for business. We all bring different experiences and strengths and are mightier together. Wanting to be more inclusive is wonderful, but hiring…
Halsey Celebrates New Diagnoses
Singer-songwriter Halsey is all about realness. They have been open about struggles with endometriosis for years. When they had their first baby last July, they publicly spoke about prioritizing time with their son over time spent trying to get back into shape, and posted a gloriously honest video about what postpartum bodies can look and…
Top 2 Digital Medication Organizers
When I was 24, horribly ill and desperate for a diagnosis, I went to my doctor seeking answers. She was very kind and listened politely but said, “You’re actually quite healthy.” Dumbstruck, I asked how she had come to that conclusion after hearing my symptoms. She replied, “Well, you’re not on any medications.” I can…